I guess that is what my blog has turned into... something I update when life lends time to do so, which means I mostly just update on who has what appointment next! First things first is Jon. Our follow up appointment to the GI doctor was actually good. We saw the nurse practictioner this time and I really liked her better than the doctor. The short of it is, Jon doesn't have Celiac Decease or a zinc issue. They have determined that he is losing nutrients faster than his body can absorb them, which they believe may have something to do with the enzymes in his stomach/intestines or pancreas. So, we return for an endoscopy on the 22nd. Sadly, they will have to put him to sleep but the procedure is quick. We hope this is the case as you can simply add enzymes through supplements... meaning we are back to eating anything he wants except what he is allergic to! I never thought I would be so happy to ONLY have to cut out dairy, eggs, and peanuts!!! He is enjoying his couscous again :).Bayler Bean is about to undergo some serious treatments that his doctors in Columbia and specialists from Sloan Kettering in NYC are working on together to offer him. Please keep him in your prayers! We have hope, but the last week has been difficult for his entire family.
Brittany and baby Oliver are still hanging in there... she will be 36 weeks next week and we hope to have an estimated arrival date sometime soon. She visits both her urologist and ob this week!
The rest of us have had our fair share of the flu/strep/tummy bugs, but hope to all be well soon. Then I can post about something other than doctor's visits and treatments! God is good and giving us strength daily... oh, and Wellspring is rocking!!! We LOVE what God is doing here in Myrtle Beach. Hope to post some of those pictures soon (must get them from Beth).
3 comments:
Dani-I know this must be so frustrating with Jon and the testing, not knowing, worrying. I hope and pray that things will soon end and there will be an easy fix!!! Praying for your entire family!
I'm so relieved you updated your blog today...been checking it constantly hoping things get better and I'm so thankful and glad for all that good and hopeful news. That is wonderful about Jon...so happy for you! Great for Brittany that she is that far along and so much safer know for little Oliver. Lastly, thanks for the update on Bayler. I will continue to pray for him and the family. I'm sure it has been so hard dealing with it all. Tell Rob and Rischa I am praying for them!!! That little guy is so strong!!! Love you, Fuzzy!
hooray for wheat. we are introducing wheat back for wesley without any runny or diasterous results thus far. i can hardly imagine a world with wheat...it seems so wonderful! so that knocks us down to soy and dairy...just an update from here. and just so you know...the rest of us (ummm...like me) learn a lot from your medical posts...esp. about what q's to ask, things that might be going on with our kid, etc....hugs,g
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